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Hello.

I'm Jane McIntyre, a voiceover and writer, formerly an award-winning BBC radio newsreader and producer. My blog covers life, love and loss; travel, coffee and chocolate; with some heartfelt pieces in the mix about my late dad, who had dementia. Just a click away, I'm half of the team behind www.thetimeofourlives.net - two empty nesters who whizzed round the world in 57 days.

Monday, 18 May 2015

Love, pride and a dad with dementia





He was only about three; a bright eyed little boy,clearly bursting with news.

Alongside him, his mum, in comfy tracky bottoms, walking gingerly. And his dad, holding a baby car seat containing a tiny bundle which was wrapped in a pale lemon blanket.

As he got closer to the bench where I was sitting, he wrenched his hand away from his dad`s, and ran up to me.

`See that?` he said, jabbing a little finger back towards the car seat.`THAT...is my new baby sister. I`m a big brother now. And I LIKE it!`

It turned out that little Emma was just one day old, and that the menfolk were there to collect her, and mum, from the maternity unit.

I waved at him as they drove away, his eyes still gleaming with excitement and pride, then finished my sandwich, soaked up the sun for a few more minutes, and headed back inside. I skipped the lift and climbed the four flights of stairs back to Dad`s ward, well aware that it was one way of extending my `lunch break` ; knowing a tricky six or seven hours still lay ahead.

You couldn`t get a bigger contrast between baby Emma`s ward and this one, I mused, as I walked back down to his room. One nurtures new life, forms families, full of future hopes and dreams. A lifetime and four corridors away, and you`re in`Geriatrics`. The care`s just as tender; the `customers` just as needy in their way, but time`s ticking by. Life`s ebbing away. Your heart can feel heavy here.

Some patients here today, like Dad, have dementia. The disease is like a giant eraser, rubbing out their lifeskills, one at a time. Independence? Deleted. Speech? Silenced. Mundane tasks? A muddle. Cutlery`s confusing; even families seem unfamiliar . This is no place for planning; surely. No place for pride?

And then, as I sit beside him, he looks again at the framed picture of his grand-daughters. And we talk about what they`re doing, and how much they love him.



I know he hasn`t held a pen for weeks; won`t touch the watercolours or sketching pencils he once drew deftly with. But I suggest it anyway. A note, maybe, for Alice. I could deliver it tomorrow, I tell him.

I busy myself in my magazine, aware that he`s moving towards the pen and pad. Moments later, he turns to me, that smile back in his eyes. `There`, he says, gesturing towards the book.

It`s a note to Alice. Personal, and loving. Just one sentence long; with words she`ll cherish for a lifetime.

Later, when the nurses come in, I tell them about it. They`re surprised, and thrilled. And I guess my eyes are gleaming a bit too. With tears that something so simple is even newsworthy. And pride--lots of pride-- that he managed it.



Dad died in May last year, peacefully at home....and the happy memories are still with us!


COMMENTS:


fabulous blog Jane - cherish the moments - they're so few as that cruel disease progresses - but so very precious xx

only really afterwards do u truly appreciate how special each "moment" was + the effort it took the person to achieve it xx

thanks for sending that to us, it is a really moving post.


Jane its great to see such positivity. That will be a treasured note:)




Love it :)

 and 5 others retweeted you
         



thank you Jane for sharing this with us. A fab blog which has truly moved me. You are a very special lady keep smilingXx

Very moving, beautifully written, thank you I think wld appreciate too



  1. thanks for retweeting my blog.Much appreciated.
  2. pleasure. Work with people with dementia.


    hold on to that moment. So special. Lost my dad 10 months ago today after 10 years of Alzheimer's.


    pleasure - i had a lump in my throat reading it x





     and 6 others retweeted you
            

    such a lovely post thankyou, treasure the good times, such a difficult disease x


    1. hi jane just read your blog & next thing im blubbering away like I dont know what, but know only too well what it feels like
    2. hi Allan. Aww sorry to make you cry but thankyou for reading it and tweeting me. Tough road ahead.
    3. its a very tough road indeed but seeing the good things hopefully far outweigh the bad,



      1. just read with much interest, my mom had dementia, it was hard to see memories fade, but sometimes funny too. I miss her :)
      2. thankyou for reading it. I'm sorry you lost your mum, and in such a sad way x
      3. Thank you it's a long old road but one some must take, I'm glad I was able to go with her,as hard as it was. I wish you well


        Got a friend with a father in similar situation. It's those little moments that she cherishes!






        1. Noting memories sufferers tell you about, for them to read, also helps to evoke further memories from them.

        2. Good idea. Last week we covered WW1, being sent down mines at 14, + being a royal bodyguard.Oh and Turner art

          ..I`ll write some notes and we`ll try those again on Wednesday. Thankyou.

          Thank you - and so true. The juxtaposition with new life very powerful